WILSON DISEASE ASSOCIATION

The Wilson Disease Association was recognized as exempt under section 501(c)(3) of the Internal Revenue Code in a determination letter issued in January 1985... In 2007, the WDA began a compassionate use program for patients in developing countries who do not have access to Wilson disease medications in partnership with MAP International. This successful program, which continues today, is possible because of product donations from the pharmaceutical companies who supply these medicines. Through this program, we have been able to help patients in 37 different countries. Another compassionate use program, for patients in Canada needing trientine, began in 2010. Unfortunately, it was discontinued in 2014 due to the stoppage of donated Syprine (trientine) by the pharmaceutical company... We are celebrating the first Wilson Disease Awareness Day in honor of Dr. Samuel Alexander Kinnier Wilson (December 6, 1877 - May 12, 1937), the American-born British neurologist who the rare genetic..

Also known as: Wilson Disease

Primary location: New York United States