RARE DISEASE DATA TRUST

OUr Team Our team's combined 40+ years in the rare disease marketplace and personal experience with the rare disease diagnostic odyssey led us to believe that there had to be a better way. We knew the data to accelerate rare disease diagnoses and target patients existed in the electronic health records. We just had to figure out how to access it while protecting patient privacy and maintaining legal compliance. Rare Disease Data Trust is the solution... Data Partnerships 75% of the patient population resides in community-based healthcare systems. We work on behalf of healthcare providers to safely and securely search their electronic health records for targeted lost or undiagnosed rare disease patients Search Sponsorships BioPharma companies looking for rare disease patients sponsor searches through Rare Disease Data Trust and have input into search data models. Alerts & Educate Providers Healthcare providers are notified when one of their patients meets criteria that suggest the..

Primary location: Brentwood United States