WASHINGTON UNIVERSITY IN ST. LOUIS

Established in 2016, the RVCL-S Research Center at Washington University is leading an effort to coordinate global research on retinal vasculopathy with cerebral leukoencephalopathy and systemic manifestations (RVCL-S), provide comprehensive and multidisciplinary patient care and initiate clinical studies and drug trials... RVCL-S stands for retinal vasculopathy with cerebral leukoencephalopathy and systemic manifestations. Since RVCL is such a rare disease, it also has been referred to by several names: retinal vasculopathy with cerebral leukodystrophy (RVCL), cerebroretinal vasculopathy (CRV), hereditary endotheliopathy, retinopathy, nephropathy and stroke (HERNS), and hereditary vascular retinopathy (HVR). The latest designation (RVCL-S) is the most accurate description of the disease process... We are focused on establishing and coordinating studies to better define clinical course and pathology, as well as (most importantly) identifying therapeutic agents for symptomatic RVCL-S..

Primary location: St. Louis United States