CINRG

The CINRG network joins together over 20 clinical and research sites from around the world to perform studies that examine promising, therapeutic interventions that may improve quality of life or extend life. We believe in a consistent and high standard of care for all patients. Our studies range from observational studies to clinical trials and post-marketing surveillance... The network has a data and safety monitoring board (DSMB) which reviews all active study protocols to ensure that all studies are conducted safety and quality data is collected. The CINRG DSMB has extensive experience in clinical research and safety monitoring in a variety of disease states, including neuromuscular disorders and includes patient representatives.