Companies similar to FAM177A1
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  • pcdsupport.org.uk
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At PCD Support UK, we put our patient community first. We are a team of volunteers whose mission it is to support families and individuals affected by PCD. We also work closely with our clinical professionals, championing research to improve the..
Relevance: 19.168226
  • www.fam177a1.org
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A family with 2 kids with a disease caused by a variant on FAM177A1 are looking for others affected by or studying the FAM177A1 gene... The Mission of the FAM177A1 Research Fund is to improve the lives of those affected by FAM177A1 through research..
Relevance: 18.295378
  • childgrowthfoundation.org
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We support children, adults and families affected by rare growth conditions. We are here to help Our members enjoy an annual convention, regular meet-ups, newsletters and online support. We fund research and help increase awareness of these..
Relevance: 18.153332
  • www.curears.org
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We are a non-profit organization dedicated to spreading awareness, connecting & providing support to affected families and funding research for the ultra-rare Mitochondrial ARS genes... CureARS Nonprofit is funding research for mt-aars disorders,..
Relevance: 18.099562
  • bloodcancer.org.uk
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Blood Cancer UK is a community dedicated to beating blood cancer by funding research and supporting those affected... The Blood Cancer UK Policy Panel was established in 2019 to make sure people affected by blood cancer are at the very centre of..
Relevance: 18.050846
  • 22q11europe.org
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The 22q11 Europe organization was launched in October 2016 as a supranational European network of 19 national self-help organizations from 14 countries. It is supported by the idea of promoting the cross-border exchange of people affected by the..
Relevance: 17.832438
  • mindsforminds.org.nz
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Minds for Minds was established to enable parents and families to better understand how minds affected by autism spectrum disorder work... A collective of researchers focused on autism spectrum disorder. Autism research allows families to better..
Relevance: 17.760824
  • vitiligosupport.org
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Vitiligo Support International (VSI) is a patient-driven, 501 (c)(3) nonprofit organization committed to supporting those affected by vitiligo, raising awareness, promoting research, and discussing effective treatments until a cure is found.....
Relevance: 17.732975
  • www.malansyndrome.org
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The Malan Syndrome Foundation was founded by 4 mothers with the purpose of providing resources and improved care and treatments for affected families. The Foundation was established in New Jersey and was designated a tax-exempt public charity in the..
Relevance: 17.487837
  • paget.org.uk
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The Paget's Association is a UK charity supporting those affected by Paget's Disease of Bone, funding research and raising awareness...
Relevance: 17.479252
  • www.brainresearchuk.org.uk
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Brain Research UK is the working name of Brain Research Trust. Fifth Floor, Holborn Gate, 330 High Holborn, London WC1V 7QH... We fund brain research to help those affected by neurological disorders. Brain Research UK - inspiring progress, together...
Relevance: 17.291039
  • www.regenataxia.co.uk
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There are many different types of ataxia and Regeneration is committed to supporting all people affected by the condition. But, being a very small charity, we focus our research and support activities towards helping those people and families..
Relevance: 17.275063
  • www.big-c.co.uk
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For 40 years, Big C has been supporting people affected by cancer. Take a look at the progress we've made and some of the personal stories of people affected by cancer living in Norfolk and surrounding counties... From its first small, but important..
Relevance: 17.082716
  • www.pcdh19info.org
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The PCDH19 Alliance is a registered non-profit by the Internal Revenue Service under Section 501 (c)(3). We are 100% volunteer run. All the funds we raise go directly to funding research, supporting families, raising awareness, and finding a cure.....
Relevance: 17.042683
  • securelivelihoods.org
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The Secure Livelihoods Research Consortium (SLRC) is an eight-year global research programme that aims to strengthen the evidence base and inform policy and practice around livelihoods, basic services and social protection in conflict-affected..
Relevance: 17.007359
  • brainsafe.se
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Over the past decade, research has progressed and more has been learned about concussions; how to treat, rehabilitate and identify concussions. But the majority of the latest information does not reach those affected, Brainsafe wants to act as a..
Relevance: 16.91324
  • www.heartland-initiative.org
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Heartland Initiative is a nonprofit practice-based research organization that promotes the fundamental rights and freedoms of people in conflict-affected and high-risk areas... Through tailored learning services, Heartland works with stakeholders to..
Relevance: 16.784452
  • nnpdf.org
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The foundation has a record of getting things done. The NNPDF was founded in 1992... The NNPDF's board continues to be comprised mainly of parents with children affected by NPD. All board members donate their time to the NNPDF on a volunteer..
Relevance: 16.735338
  • supporting.afsp.org
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Established in 1987, the American Foundation for Suicide Prevention (AFSP) is a voluntary health organization that gives those affected by suicide a nationwide community empowered by research, education and advocacy to take action against this..
Relevance: 16.722387
  • autism.org
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The Autism Research Institute (ARI) is a non-profit 501(c)3 organization focused on conducting and sponsoring research aimed at improving the quality of life for today's generation of children and adults with autism spectrum disorders... The Autism..
Relevance: 16.57417
  • www.satb2europe.org
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CureSATB2 is our bold initiative to drive and support international research related to SATB2-associated syndrome. Our mission is to speed up the discovery of contributing mechanisms of the disorder and bring targeted treatments - and ultimately a..
Relevance: 16.503763
  • www.farmabrasilis.org
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Research and development of new medicaments and technologies for the benefit of economically disadvantaged populations and individuals affected by neglected diseases... Create and disseminate new strategies for research and development of medicines..
Relevance: 16.490448
  • pacfi.org
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PACFI is unique in being able to help individuals and families affected by CF in Pennsylvania, to fund good research, to help international patients through CF Worldwide and more recently through networking via the PACFI and Burke P. Bear Facebook..
Relevance: 16.47649
  • cansolveckd.ca
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We are a national partnership of patients, researchers, health care providers, and policy-makers working to transform treatment and care for Canadians affected by chronic kidney disease... After many years, our efforts are starting to bear fruit: we..
Relevance: 16.474813
  • sanfilippoinitiative.org
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Sanfilippo Initiative is an answer to needs of parents with children affected by Sanfilippo Syndrom (MPS III). We focus on supporting research and all initiatives that will lead to finding a cure for this devastating disease...
Relevance: 16.456276
  • senecadiabetes.org
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The mission of the Seneca Diabetes Foundation is to provide education outreach, prevention awareness and fund research to improve the lives of Seneca Nation Members affected by diabetes...
Relevance: 16.45501
  • www.achromacorp.org
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Achroma Corp. is a non-profit 501(c)(3) tax-exempt charity started in April 2012 by John and Bridget Vissari. John and Bridget are the proud parents of three amazing kids, one of which is affected with a rare genetic disorder called Achromatopsia.....
Relevance: 16.411146
  • iffgd.org
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IFFGD was founded in 1991 by one person struggling with the challenges imposed by a chronic GI disorder. Many others, from all walks of life, have joined with us... IFFGD is a nonprofit education and research organization. Our mission is to inform,..
Relevance: 16.366228
  • www.kpwashingtonresearch.org
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The PCORnet Bariatric Study is funded through a Patient-Centered Outcomes Research Institute (PCORI) Award (#OBS-1505-30683)... The PCORnet Bariatric Study (PBS) team are a team of researchers, bariatric surgeons, clinicians who treat people..
Relevance: 16.360117
  • icpcare.org
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ICP Care is a 501(c)(3) nonprofit determined to help pregnant mothers who experience Intrahepatic Cholestasis of Pregnancy and to deliver healthy babies. ICP Care's mission is to provide patient support and education, raise public awareness, support..
Relevance: 16.230091