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  • www.aspia.org.au
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Asperger Syndrome Partner Information Australia (ASPIA) is a Sydney-based support group and information source for those who are involved in or interested in marriage and long-term relationships with adults with Asperger's Syndrome (or suspected of..

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  • cureangelman.org
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FAST is committed to assisting individuals living with Angelman syndrome to realize their full potential and quality of life... Searching for a foundation for Angelman syndrome? FAST is here to advance groundbreaking efforts in Angelman syndrome..

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  • dsachieves.org
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DownSyndrome Achieves is a non-profit organization focused on promoting critical research for Down syndrome and associated conditions. Learn more about DSA's efforts and involvement with research and Down syndrome communities... Through the DSA..

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  • dsheartland.org
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Down Syndrome Association of the Heartland (DSAH) offers support to individuals with Down syndrome, as well as their families, friends, caregivers, teachers, and coworkers. DSAH strives to educate the public-at-large about Down syndrome. We want..

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  • www.checkyourballs.com.au
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13,000 Aussie males do not know they have Klinefelter's Syndrome. Are you one of them? Self examination is the first step to your wellbeing. What is KS?... Check your balls! One in every two Australian males with Klinefelter Syndrome remain..

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  • www.h63d-syndrome.org
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The discovery of Oshtoran Syndrome can be traced to an Iranian patient and her descendants who originated from the Zagros Mountains. The first studies were conducted in Iran, and the syndrome was later rediscovered in 2023 by a team of researchers..

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  • angelmanwa.com.au
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Our mission is to support, inform, educate, network, and advocate for families with a child with Angelman Syndrome... Angelman Syndrome Association of Western Australia, supporting, informing and advocating for Angelman Syndrome families...

Relevance: 14.385953
  • www.alportsyndrome.ca
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Alport Syndrome is a genetic disorder characterized by glomerulonephritis, endstage kidney disease, and hearing loss. Alport Syndrome can also affect the eyes. In 1927, Dr. Cecil A. Alport first described the combination of progressive hereditary..

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  • www.ndsccenter.org
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The National Down Syndrome Congress (NDSC) is a not-for-profit organization dedicated to an improved world for individuals with Down syndrome. Founded in 1973, we are the leading national resource of support and information about Down syndrome, from..

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  • usherireland.org
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Usher Syndrome Ireland is borne out of an online support group, called Usher Ireland, on Facebook since 2014. This online group was created at a time when there was little to no way for people living with Usher syndrome in Ireland to find others..

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  • www.gpcts.co.uk
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We work in conjunction with Barts Healthcare. This is an NHS service for patients with suspected Carpal Tunnel Syndrome. We have been providing a service assessing, diagnosing and managing patients with carpal tunnel syndrome since 2005. During this..

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  • rettillinois.org
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Welcome to the Rett Syndrome Association of Illinois. We are dedicated to developing awareness and understanding of, and furthering the advancement of research for Rett Syndrome... Rett Syndrome Association of Illinois (RSAI) serves as a support..

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  • www.chargesyndrome.org
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The mission of the CHARGE Syndrome Foundation is to provide support to individuals with CHARGE and their families; to gather, develop, maintain and distribute information about CHARGE syndrome; and to promote awareness and research regarding its..

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  • dsctn.org
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The Down Syndrome Clinical Trials Network was built to conduct large-scale, multi-site trials with experienced clinicians who are experts at providing medical care for individuals with Down syndrome. Founded in 2019, today the DS-CTN is accelerating..

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  • nocodownsyndrome.org
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The Northern Colorado Down Syndrome Association (NCDSA) started off with just a couple of parents who were determined to bring together families in Northern Colorado who have a loved one with Down syndrome. Since then, we have grown to an..

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  • mtdsa.org
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Our mission is to honor and nurture the extraordinary lives of people with Down syndrome by advocating for them as well as providing educational, financial, social, and emotional support... The Montana Down Syndrome Association was formed in..

Relevance: 14.174593
  • www.kabukisyndromefoundation.org
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Additionally, we intend to foster collaboration across the medical and scientific communities, to create synergies and attract more resources focused on Kabuki Syndrome... We all know that people with Kabuki syndrome are warriors. Despite the many..

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  • cdssa.ca
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The Canadian Down Syndrome Swimming Association (CDSSA) is a member organization under Down Syndrome International Swimming Organization (DSISO) and the National Sport Organization representing swimmers with Down Syndrome in Canada. Our organization..

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  • rowansds.org
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Rowan's Down Syndrome Awareness Centre (RDSAC) is aimed at creating and running a center for Down syndrome, providing high quality and affordable services which enable people with Down syndrome in Hoima, Bunyoro and Uganda at large to live normal and..

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  • cantu.wustl.edu
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The Cantu Syndrome Interest Group is a worldwide network of clinicians, scientists and patients seeking to understand, inform and develop appropriate therapies for Cantu Syndrome. Led by groups at Washington University School of Medicine in St...

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  • www.downsyndromefriends.org
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Our MISSION is to provide resources for support and education for families, friends, and care-givers of individuals with Down syndrome. We hope to help people with Down syndrome improve their quality of life through advocacy, education, and promoting..

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  • www.dsrf-uk.org
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The DSRF UK Is A National Charity Formed By Parents Of Down's Syndrome Children Who Want Greater Emphasis Placed On Medical Research... We are the UK's only Down's syndrome research charity. Our vision is a long, healthy, happy life for people with..

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  • sharingds.org
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We have attended xmas parties and walks and our sons LOVES it all. Sharing Down Syndrome AZ makes us feel like we are not alone and makes sure our kids get the inclusion they deserve, along with making sure they get the services they also deserve...

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  • autism-on-the-seas-store.myshopify.com
Autism on the Seas, an international organization, has been in collaboration with Royal Caribbean International since 2007 in developing cruise vacation services to accommodate adults and families living with children with Special Needs, including,..

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  • www.dsa-lancashire.org.uk
We aim to support families and carers and all those with an interest in Down's Syndrome in and around Lancashire... The DSA believes there should be legislation that ensures consistent and accurate information for people who are given a diagnosis of..

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  • cs-europe.org
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After searching the internet, we found the Christianson Syndrome Association and the Facebook-Group. In 2013 we were invited to attend the "Inaugural Christianson Syndrome Association conference: families meeting for the first time" in Rhode Island,..

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  • www.teamupfordownsyndrome.org
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Team Up for Down Syndrome is dedicated to improving the lives of those with Down syndrome and other special needs to help them and their families reach their full potential... Who We Are How We Help What We Do Board of Directors Rex & Jennifer About..

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  • angelmanalliance.org
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Our mission is to grow and support scientific knowledge about AS that can create fundamental and lasting changes in therapy for people with Angelman Syndrome... The Angelman Syndrome Alliance (ASA) is a partnership of small organizations from around..

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  • fragilexinterventionplatform.weebly.com
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The Fragile X Intervention Platform was created by two Brown University students, Andrew Li' '15 and Sang Woo Kim '14, as part of their final creative project for their cognitive neuroscience class, The Developing Brain, taught by Professor Andrea..

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  • www.statelinedownsyndrome.com
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The Stateline Down Syndrome Foundation wants to help that goal come true. It can be done by supporting organizations like GiGi's Playhouse Rockford that provide services to those with Down syndrome in the Northern Illinois region... For those who..

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