FSHD EUROPE

FSHD Europe is the voice of FSHD patients across Europe and by joining you will become part of that bigger and louder voice. We work with clinicians and researchers, regulators, and pharmaceutical companies... FSHD is a genetic disorder and can affect many family members across generations. In about 30 percent of cases, there is no family history of FSHD. Two genetic forms of FSHD are generally distinguished, FSHD Type 1 and FSHD Type 2. The two types share the same symptoms, but they differ in their genetic cause. More than 95% of patients have FSHD type 1... In 2021, FSHD Europe established the FSHD European Trial Network (ETN) to support collaboration to reach trial readiness, building on current research on FSHD in Europe.

Primary location: Den Haag Netherlands